Come on folks, Lets help brave Kyle walk….

Kyle is 5 from Co Meath in Ireland. He has Cerebral Palsy and can’t stand or walk…yet! 

While my own little boy is riddled with JIA (Juvenile Idiopathic Arthritis) I have always been of the opinion that as much as he suffers there is always and I do mean always people in life that are either better off or not than he is or ever will be, that’s life.  However, I heard of my friend’s son Kyle’s brave battle with Cerebral Palsy and the possible treatment that will enable him to walk. Just4Children is fundraising to help Kyle make his very first footprints. Kyle was born 6 weeks premature. It was established that there was damage to the white matter of his brain known as Periventrcular Leukomalacia (PVL) which causes Cerebral Palsy (CP). The white matter sends nerve impulses that controls motor function. Kyle’s disability affects his legs with increased muscle spasticity (an involuntary contraction causing searing pain). The diagnosis was devastating – he would be wheelchair bound for life.

From No Hope to Know Hope

My Journey, my Hill with my Team (Orla from Enable Ireland at 1.26; Claire from SDR Fitness Wales (Ireland) at 1.54, Martin and Mark from SDR Fitness Wales at 2.15 & 2.47, Katie his preschool SNA at 3.15. and Dr Park at 4.42 the global expert in SDR surgery)

Posted by Kyle's Wish to Walk on Sunday, 16 September 2018

However, Kyles parents found out about a surgical procedure that is carried out at St. Louis Children’s Hospital in Missouri by an amazing human being, Dr T S Park (known as the Guardian of CP). SDR or Selective Dorsal Rhizotomy is a procedure that selects (Selective) problematic nerves in the spinal cord (Dorsal) and cuts these nerve roots (Rhizotomy) which provides pain relief by reducing the tightness and frees the muscles to act normally.

The fundraising is for Kyle’s SDR surgery and aftercare physio to get those little legs firing for the very first time.

Kyle has a fierce spirit and asks for your support.

So here is your chance, drop over to the fundraising page below and rather than spend a few quid on a pack of cigs or a pint, just drop in into his fund, you know you want to………

 

Kyle’s Wish to Walk

The Working Dad

The Working Dad

The Working Dad is a regular guy called Darren, Working as a senior manager for a leading NGO I have two kids and happily married. This is my blog about the life and times of being a dad today..
The Working Dad

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